Results from the Starting Hizentra Administration with Resources and Education (SHARE) Program

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#IVTEAM #Intravenous literature: Duff, C., Riley, P., Zampelli, A. Murphy, E. (2014) Participant Survey Results From the Starting Hizentra Administration with Resources and Education (SHARE) Program. Journal of Infusion Nursing. 37(1), p.21–28.

Abstract:

Increased use of specialized infusion therapies has necessitated training of health care providers and patients. The Starting Hizentra Administration with Resources and Education (SHARE) program provided 709 US participants with information to educate patients with primary immunodeficiency disease (PIDD) on self-administration of 20% subcutaneous immunoglobulin (SCIG). Postprogram surveys assessed participants’ experience and opinion of 20% SCIG. The most frequent questions about 20% SCIG regarded subcutaneous challenges (29%). Participants stated that all attributes of SCIG were beneficial (51%), and they expressed interest in future programs on non-PIDD diseases (26%). Survey results will assist in future SHARE and other relevant educational program optimization.

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